Friday, August 15, 2014

It's the Details that Make a Difference

Wow.  What a week it has been.  We have all been through so much and I am so worried about my family, and my stressed out husband.  The Lord has given me a lot of suffering, but he has some extra stresses right now and could use some prayers as well!

Just a few things that I wanted to remember while it is fresh in my brain.

  • My mother and I made an executive decision to go to the hospital near us.  My OB doctor and the ones who handled everything last time is about 30-40 minutes away.  I thought that for ease of my husband (who is taking care of the kids), and that I might be able to get pain medicine sooner we should go close to home.  From this decision, I am afraid a lot of things went wrong that should not have.  They did not have my records so did not know my history (they had to get it faxed over) so it took longer to get pain medicine.  (ACK.  So awful.)  When I had my kidney issues last time, I had a "cocktail" as soon as the nurses saw me and heard me.
  • Thinking back, I think it would have been better to have MY doctors around me.  Not that my care was bad from any of the doctors, but they didn't know me.  I missed my OB, an amazing office with Catholic, pro-life doctors.  Maybe it would have been better to deal with the same urologist that helped me last time.  (Yeah, I know.  Only God can tell me what WOULD have happened, and he isn't likely to do that.)
  • After my nephrostomy procedure, I woke up with (JOY!) no pain anymore, and was so relieved that I did not ask very many questions about the procedure, follow up, care, etc.  I know I was under anesthesia, but Tommy wasn't.  They could have mentioned a few things to him about it.  But, I was at the hospital and I trusted that the nurses and doctors were taking care of me, and would know and help me.  I was there from Wednesday night until Sunday afternoon, and I did try to ask some questions, but they put me in the OB unit and it was a little more complicated.  I got lots of discharge papers about other things, but nothing for this tube coming out of my kidney and draining into a bag. 
  • On MONDAY night, I was once again in pain.  Same pain, same area.  Bag was not being filled and I knew there was a problem.  We went back to the ER, and the ER doc said, "You need to flush this daily."  Oh.  Okay.  More narcotics, and saline to flush.  Frustration growing.  (On a lighter note, my dad said to me, "Didn't your mother teach you to flush?")
  • On WEDNESDAY morning, at 4AM, we needed to go back to the ER.  Same thing, except this time, my tube is leaking (major ick factor) and I am hurting.  Again.  They did the same thing.  I thought it was fixed, but as I got home, I noticed my pants were wet.  Again.  BIG time annoyed.  I decided to make a stink.  I called the urologist, waited for a call back, and when one didn't happen, I told Tommy we were leaving.  I was trying to be patient and not get angry, as was my calm husband.  We would plant ourselves in the doctor's office until they saw me, or point us towards what we needed to do, or SOMETHING!!  So we did.  The urologist was super sweet, and tried to help us but admitted that they didn't have the parts to fix it, but then CALLED THE HOSPITAL for us, gave us an order, so we could go DIRECTLY to the Interventional Radiologist (who put in the nephrostomy) and we got to go right to where we needed to go for help.  Let me tell you, I was so hesitant that we were going to get help.  Just somebody help!  3 angels in scrubs entered our room: 2 nurses - one British, one very "pumped" male nurse and a DOCTOR!  First thing they said was that we are missing a piece to our tubing.  Oh geez.  As soon as that piece was put on, the bag IMMEDIATELY started filling up.  Then they start asking us how we were flushing it, and you know what? They looked at us and said "You aren't ever supposed to touch that part."  Great. So, with the help of these 3, we got all our questions answered AND, a PHONE NUMBER to call if we have another problem!  As we left, I burst into tears and just kept saying prayers of thanks.
  • I am hesitant to say that everything has been smooth, but at least we are not back at the hospital again.  Baby is doing well, and they won't stop my labor after 37 weeks.  Is it wrong to hope a little?  They gave my the steroid shots for the baby's lungs, so I am not so worried. 
  • I miss my kids.  This week has been a whirlwind of activities for them at someone's house, the pool, or something to keep them occupied.  The doctor that released me said that I needed to have help with the kids.  My in-laws and my mom have been here just about every day, including our 4AM ER visit, and doing the driving to and from basketball camp for Emma and orthodontic appointments for my kids.  My sister-in-law set up a meal train for the family and we have had so many generous offers for anything and everything.  I have been alone the majority of the days this week, and it is kind of lonely.  Poor Tommy has been trying to telework most days, and has helped me with medicines, doctor visits, grumpy moods, shopping and scheduling the kids out and about.  But, to be honest, it's been a little too quiet sometimes.  Maybe I am feeling a little selfish in how I want my days to go, but I am also worried that the kids are worn out from all the shuttling, and we have 10 days until school starts!  (Oh, and did I mention that I goofed on the supply lists?  What else is new.)
Anyways,  I can't believe the week it has been.  Please keep us in your prayers.


Lisa said...

Definitely praying, Fuzzy. I can't imagine all of that going on, on top of getting ready for a new school year too! And so sorry about the lacking medical treatment and poor communication/ education- that's so unfortunate and should not happen!

Jennifer Gregory Miller said...

I'm glad things are on the improvement. But we will not do PW again, right!?

Carole in Wales said...

Keeping you in prayer, Fuzzy! I am glad to hear things are improving. I hope it all stays that way until baby comes!